A Riveting Parent Perspective

May 19, 2019

How do I begin to describe the wonder we named Kaleaha Marie Maldonado? We have been blessed to have her in our lives for 30 years. We were told average life expectancy of a Jacobsen Syndrome child was 2 years old. We were told this by a genetic counselor when she was 3 years old. That pretty much sums up the information from 1970 we had until Kaleaha was 5 years old.


Around this time, I learned of the human Genome Project: The main goals of the Human Genome Project were to provide a complete and accurate sequence of the 3 billion DNA base pairs that make up the human genome and to find all of the estimated 20,000 to 25,000 human genes.


How did this affect us? Thirty-five families from all over the USA agreed to meet at Southwestern University in Dallas Texas. It was going to be a costly trip, so we needed help. A wonderful radio show team called The Dog House the hosts JV (Jeff Vandergrift) and Elvis (Dan Lay) helped us out by doing a fundraiser. JV swan from Alcatraz Island to pier 39. JV did it! His team and listeners Raise enough money and got us to Dallas Texas.


We all met there, and that evolved into the 11Q R&R USA group. You can learn more about that by looking up 11qusa.org. That was the beginning of a parental community that help me navigate the rest of Kaleaha’s educational years. I learned about IEPs and different types of programs to request assistance for.


Kaleaha’s educational learning started with regional center programs like early intervention programs. She had to learn sign language at 1st since she couldn’t verbalize well until after age 3. She was having multiple ear infections, and it took until this age to get her treatment to remove fluid from behind her ears to allow her to hear our voices. Prior to this her hearing was as if she was underwater.


Kaleaha continued from 18 months all the way through 22 years old in the public education programs. After the age of 22 we had a few special day programs that we tried out for adults. This is where most of our difficulties began, we tried the various programs that would allow a 1:1 aid to assist Kaleaha. After trying the multitude of adult special day programs that were available in our area. I was pretty much ready to give up.


We switched Kaleaha to the Independent Living Skills program known as ILS. This worked out well for a little while a couple of years in fact. Then we ran into difficulty with staffing so now we started using different companies. We always ran into the same problem staffing. It was never consistent, and this seriously affected Kaleaha’s mental and cognitive abilities, severely triggering her negative autistic tendencies.


We were incorporating ABA Therapies at the same time as using the ILS services, so we were able to hunker down refocus and bring her out of the cycle. Then we started looking for new programming. With a referral we visited College of Adaptive Arts. We visited this campus. We were skeptical at first about its functionality with an individual who required a 1:1 aide.


Kaleaha’s ILS service provider thought it was worth a try she was very impressed with the progress she saw with her other clients. My fear held me back for a little bit, but I really wanted to get Kaleaha into a program that would provide her with more normalcy like she had throughout her previous educational years. I thought, “Well let’s give this a try.”


We selected some courses and arranged various caregivers. Kaleaha started her first day at College of Adaptive Arts. It took a little bit to find her groove but once she did, she took off like a rocket! She started participating in programs that got her back out into the community. Classes that rekindled her love with cheerleading. Reading and speech have become new interests for her. She participated and several events and her collegiate career has been on a fast track at lightning speeds ever since.


As a family, we do not believe Kaleaha would have accomplished the amount of success and overcome the many hurdles that she overcome had not been for the staff and programing at the College of Adaptive Arts. They have formatted a program that seeks out abilities and applies the knowledge to format a curriculum that allows individuals with different abilities to prosper and shine like the superstars they are.


Kaleaha is one of the lucky students to have found the wonderful staff and program that is The College of Adaptive Arts. Please come a visit the program there is nothing to lose, but everything for your student to gain.

 

By DeAnna Pursai January 19, 2026
On this auspicious day celebrating the life of Dr. Martin Luther King, Jr., College of Adaptive Arts strives each day to live the legacy inspired by Dr. King. College of Adaptive Arts embraces the spirit of Dr. King by providing a lifelong collegiate model to adults who historically haven't had access to higher education. It's based on the premise that everyone has value to learn, connect, and contribute. What's truly refreshing about this lifelong learning model is the power of teamwork, inclusivity, and support for one another. Many of our staff have declared disabilities. They work tirelessly to support each other, back each other up, set their teammates up for optimal success. The students are off all ethnicities, backgrounds, disabilities, and ages over 18 when the college stage begins. Their support and goodwill for each other is a true shining light for us all to embrace. They know when each other is hurting, and they go out of their way to support and be a helping hand. They liberally give compliments in class on the thoughts and ideas each other present. They work alongside each other and hold space for each other to be who they are. These are most complex times we are living through. The College of Adaptive Arts model is truly a shining light on the best of humanity and human dignity and goodwill. We invite you to experience this vibrant lifelong learning model through a student-led tour each Friday CAA classes are in session, 1pm PST online virtual and 2:30pm PST in-person on the beautiful campus of West Valley College in Saratoga, CA: https://www.collegeofadaptivearts.org/tour-landing-page
By DeAnna Pursai December 31, 2025
2025 has been a pivotal, transformational year for @College of Adaptive Arts (CAA). The conversations we’re having across the community continue to affirm that we are on the right track in advancing an expanded, adaptive higher education model—one we believe can scale nationwide and beyond. We hear it constantly: “Wouldn’t it be nice to have this model in my community? ” If we had a dollar for every time someone said that, we’d be much further along in realizing our vision of lifelong learning for all. CAA fills a critical gap in access to authentic, lifelong learning opportunities for adults with intellectual and developmental disabilities (IDD). Across the country, momentum is growing for inclusive collegiate partnerships and postsecondary programs. These efforts are phenomenal and exciting—but many are limited to a traditional four-year, post–high school timeframe, often ending around age 22. For adults with IDD, disability accommodations at typical colleges and universities (such as extended time, test readers, note takers, or separate testing spaces) may not be sufficient or appropriate. When those supports don’t meet their needs, educational options become narrow and limited. That’s the gap CAA is designed to bridge. CAA is a lifelong learning model. Credits are earned through exposure to instructional concepts. Undergraduate and graduate diplomas are awarded based on hours of participation. After receiving a diploma, students are welcomed and encouraged to re-enroll and continue learning at their own pace, for as long as they wish. Some students take just one class that sparks their curiosity; others enroll in multiple courses. Some explore a subject for a semester or two, then pivot to a different area. Many students value our online-only option due to medical complexities or limited transportation, while others prefer in-person learning. This flexibility is a key reason we envision this model embedded on college campuses nationwide. Our graduate students can enroll in our workforce development program, which offers adults with IDD paid apprenticeship positions where they can gain meaningful, practical workforce skills. We see CAA as a flexible, scalable model of lifelong learning that communities across the country can adopt—much like the way Special Olympics has transformed access and inclusion in athletics, CAA aims to do so in higher education. To measure impact, we focus on improvements in: Quality of Life Hope Confidence Connections & Friendships Pathways to Contribution These indicators remain consistently high—not only for CAA students, but also for faculty, staff, parents, and care providers. This adaptive, lifelong learning model benefits: Adults with IDD who are eager and hungry to learn. Adults seeking meaningful, part-time or gig-based employment in a dynamic, supportive environment. Parents and care providers—one parent shared, “I can finally sleep at night.” Communities, which begin to see adults with disabilities in a new light, recognizing their talents, skills, and contributions. We are deeply grateful to the many community partners who have leaned in this past year to share their resources, insights, and wisdom, including: @Greenbrier, @SASCC, @StateSenatorCortese, @JoeSimitian, @PamFoley, @Visa, @GoldenStateWarriors, @CDSA, @Arm, Inc., @SaratogaSprings, @BlueOakNx, @WestValleyCollege, @LaneyCollege, @Profound, @BlindInstituteofTechnology, @Hiline, @ImpactPro, @MissionCollege, @SamLiccardo, @OpenAIPeopleFirst, @TEDxViikki, @CynthiaGregory, @AssociationofHigherEducationandDisability, @AmericanAssociationforIntellectualandDevelopmentalDisability, @Brainshare, @OnlineAssistantPro, @SanAndreasRegionalCenter, @CADepartmentofDevelopmentalServices, @CaliforniaAssociationofPostsecondaryEducationandDisability, @ForbesNonprofitCouncil, @SheriJayCoaching, and @HummingbirdStudio. The groundswell of support for this lifelong higher learning model is palpable. Onwards and upwards for eager and hungry lifelong learners.
By Michael Reisman September 24, 2025
State Senator Dave Cortese shares his support & rationale for supporting this lifelong, adaptive equitable education model for workforce development & scaling and replication.

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